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And breathe….
I realised that I didn’t do my update on my blog! This week has been a whirlwind since getting my PET scan results because we are travelling the week and I have so much to get ready! Anyway, my PET scan didn’t show anything new and ominous and in the words of my oncologist “It’s very, very good!” which is the best news ever! My husband and I were talking about the differences in how we feel – the waiting zone and the good news zone – it’s literally two separate worlds! That surge of relief and happiness is quickly followed by complete exhaustion from the anxiety! No matter how…
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What has been your journey to today?
I faced death right in the eye on the 8th August 2019 when I was diagnosed with stage 4 colon cancer which had mestastisized to my liver (& at the time we thought the lung also but luckily it hadn’t), time froze & I remember almost leaving my body. It still haunts me to this day, the surreal feeling of that news because let’s face it, the mention of stage 4 to someone that knew nothing about cancer was not good. The mind only goes in one direction. How did this happen? I’m a mom. I can’t die. My child. Absolute panic beyond words. But somehow, I got myself together…
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Life as I currently know it
I have not updated in like forever ( I say that on every post!) and they’re always on my Instagram stories so some of you miss them! Quick recap for those who don’t know me that well. I had a recurrence of colon/bowel cancer mets in my liver October 2021. A 3cm lesion was cut out and I went into remission AGAIN! I’m currently on IV Oxaliplatin three weekly. Side effects (I get are neuropathy, nothing cold at all or my digits do all kinds of weird things and my throat closes. Bad nausea and overall exhaustion. I am up and about but I can’t drive until at least day…
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Liver surgery number two!
A routine MRI of my liver on 11th October revealed a 30 x 11 mm lesion (still small) on the remaining anterior (outside) part of my right liver lobe. My previous surgery removed 60% of the right lobe and 10% of the left, as well as my gall bladder. My bloods also 11th showed CEA markers at 3.1, < 2.5 ng/ml being normal. This news has obviously come as a huge shock albeit I was not entirely surprised because stage 4 metastatic cells lay dormant and can often wake up. I am just happy it isn’t on the ‘fresh’ liver! That is why we raise awareness about symptoms and a…
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Dawn’s colon cancer story
To think about when my story began, I guess it would have to be New Year’s Eve 2000. I went to a New Year’s Eve party in Connecticut (where I’m from) with my mother and step-father. That night my mom wasn’t feeling well. When I look back at the pictures, I can see that she did not look healthy. After the holiday, Mom saw her primary care physician who treated her for bronchitis and pneumonia. Early February came and her condition did not improve so they sent her to the hospital for x-rays and scans. It turned out that she had small cell lung cancer. Mom hated doctors and was…
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Understanding ‘mets’
When we talk about cancer, we use stages to determine where the cancer cells have traveled. When I was first told that I had cancer, the doctor said I had a tumour in my bowel and the cancer had traveled to my liver and maybe my lung (can’t remember which one now and it hadn’t, thank goodness) so bascially my cancer had mestastasized, quite simply put, it had spread from the primary source (my bowel/colon) through lymphatic nodes and to other organs. So, when people with cancer talk about mets (also known as lesions) or in my case liver mets, they are saying a form of tumour in another organ.…
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Benj’s story
‘Benjamin Anthony Millard, our son, Abigail and Stephanie’s brother, was a husband, stepdad, grandson, nephew, cousin and friend. We all loved him…we all love him. Where do you start a loved one’s cancer story, when the story was so short and the outcome was so poor, but that was Benj’s journey with cancer. So the start, as with every one, is the day Benj discovered he had cancer, and the end came less than eight months later when he lost his life to bowel cancer. Pre-diagnosis So rewind a little, pre-diagnosis, and meet Benj. He was 6’ 2”, he ate healthily and well, he went to the gym every day,…
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Liver Resection and Recovery
It’s been a while but I have finally kicked myself into gear and written a post!! It’s a long one but every detail highlights my journey, ups and downs…… If you have been following my story, you should know that I went into remission or at least it seemed that way in May and if you are just reading my journey for the first time, I will try to explain as much as I can! I had a great clinical response to my chemotherapy and the six lesions that I had in my liver appeared to have calcified. Scans of any kind are not 100% accurate, a cancer cell is…
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Martha’s story – La historia de Martha
My name is Martha, I am 48 years old and I live in Florida. I was diagnosed with colon cancer on December 20, 2017 at age 45; this is my story. I am the mother of two beautiful young children and the wife of a wonderful man. The fourth of five sisters created by good parents, especially my mother. My life changed in December 2017 when what I thought was a simple problem of exhaustion turned into a nightmare. It was during a very important time, my daughter was turning 15 which is a tradition for young Latino women, the celebration of her 15 years. We were preparing a…
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Tommy’s story
My name is Tommy. I am 32 years old and live in Orlando, Florida. I was diagnosed with stage lV Colon Cancer in May of 2018 at the age of 30, which was the age my late grandfather was when he was first diagnosed with colon cancer. My journey begins in early 2018 when I began to notice that I was rapidly losing weight. I was not working out on a daily basis and was not dieting. I was also having night sweats pretty much nightly. I went to see my primary care physician and explained my symptoms. They had me do a blood panel, which yielded negative results. They…
